1 in 100 babies are diagnosed with a Congenital Heart Defect. This means that the condition is present from birth. It is one of the most common types of birth defects among babies caused by abnormal formation of the heart during growth in the womb.
Eleven years ago, I was introduced to CHD through a Facebook page called Cora's Story. This family lost their newborn baby in the first five days of having her due to an undiagnosed CHD. The pain it caused and the shock of having to learn about this condition from the coroner stuck with me. It shook me as a new mother.
After connecting with more heart moms who have been through a diagnosis and learning more about CHD, I started getting active in bringing awareness. We held Lovey Donation Drives, created fabrics to bring comfort and worked with parents to fundraise for their local organizations.
In 2019 Kelly Blumenthal, mom of Finn and founder of Facebook prayer page Prayers for Finn and I decided to design a CHD awareness fabric showing that there are 100 hearts with 1 broken. Our hope is to raise awareness and bring comfort to families during these most difficult times. Available in masks, hair accessories and our 10x10 CHD Heart Lovey.
NBC 10 Philadelphia interviewed both Kelly and I about our efforts to send Care Packages to Children's Hospital Philadelphia for heart month. These packages come with a CHD Lovey, baby bow (for hair or bow tie) an adult headband and face mask - available online until February 28th 2021 with a delivery of March.