This summer...it finally happened!
At 3.5 months old, Emily under went her 1st open heart surgery. May 16th, 2016. The very next day she went into heart failure. She was on and off of life support 5 times before the decision was made to go back in and perform a 2nd, life saving, operation. That one took place on July 11, 2016. Emily was FINALLY discharged from an excruciating 95 day stay on August 18th, 2016! We were far from in the clear though. Emily was re-admitted simultaneously EVERY SINGLE MONTH for the next year for various reasons. Most of which was for respiratory distress.
That cycle became our lifestyle. We didn’t get to enjoy normal family activities. We were in a bubble.
This past May, May 21st 2018, Emily underwent her 3rd open heart surgery to replace her left mitral valve. This surgery was a game changer in so many ways! Her body is finally growing and she’s developing more, meeting milestones on her own time. Along with her heart strengthening enough to fight off germs without a hospital admit every month! So to say that we enjoyed our summer would be an understatement. It has been so blissful to be together as a family of four and enjoy all the simple daily pleasures in life, along with some extra summer fun!
Emily was finally home this summer. We really did not hold back at all!
CHD didn’t take anything away from us. If anything, it just made us appreciate what we already have.
I hope that our Emily's Heart page on Facebook and Instagram gives you hope and for those who are yearning for days like we had this summer...I say: don't wait. Do YOU and make most of the moments you have with your loved ones, even if it is in the hospital.
Do not let a diagnosis define your limits because there should be no hesitation for happiness!